Established: 2014
Number of Members: 459 (as of 2025)

Background of the Association
Chronic Lymphocytic Leukemia (CLL) is classified as a rare disease in Korea, making information and support scarce. In 2014, five patients and family members formed an online community, which has since expanded into an independent association dedicated to supporting CLL patients and their families.

Objectives of the Association
– Provide a platform for CLL patients and their families to share treatment information and experiences
– Deliver updates on new treatment options and drug developments
– Offer emotional support through regular meetings and programs

Key Activities
Online Community Management
– Patients and family members share their treatment experiences and progress
– Latest news on new drugs and treatment methods
– Q&A board to facilitate patient-to-patient communication

Regular Meetings & Information Sharing Sessions
– Offline gatherings where patients and families can meet and share experiences
– Mentoring lectures and Q&A sessions by the organizing team for CLL patients
– Networking and information exchange among patients over a meal and coffee after the lecture

Membership & Participation
The CLL Korean Patients & Family Association is open exclusively to CLL patients and their families. Upon joining, members share basic information about their condition and treatment progress. Those interested in joining or participating in association activities can do so via the following methods:
– Online Community Registration: http://cafe.daum.net/withcll
– Email Inquiry: cll_kpfa@daum.net
– Phone Inquiry: Director Jung-Hyun Han (+82 10 8887 4677)

Future Plans
– Expand the provision of information on the latest treatment methods and new drugs for CLL patients
– Host regular health management seminars for patients and their families
– Strengthen mentoring programs for newly diagnosed patients and their families