The group was originally founded as the MPN Patient Advocacy Group Thailand, with the aim of providing up-to-date, trustworthy information and support to patients living with myeloproliferative neoplasms (MPNs).
Through its website www.mpnthailand.com and an active Facebook community, the organisation has become a respected source of patient-centered education, inspired in part by insights gained from the MPN Advocates Network (MPNAN) and MPN Horizons Conferences, attended annually by the founder.
Over time, the group’s reach expanded organically as patients with other forms of leukemia, particularly Acute Myeloid Leukemia (AML), Acute Lymphoblastic Leukemia (ALL), and Chronic Lymphocytic Leukemia (CLL), began reaching out for support. Responding to this need, the founder established two additional Facebook pages to extend targeted support:
- Acute Leukemia Patient Advocacy Group Thailand
(ชมรมผู้ป่วยโรคมะเร็งเม็ดเลือดขาวชนิดเฉียบพลันแห่งประเทศไทย)
https://www.facebook.com/share/p/LFzDHhpDrRYS5SP3/?mibextid=oFDknk - CLL Patient Advocacy Group Thailand
(ชมรมผู้ป่วยโรค CLL ประเทศไทย)
https://www.facebook.com/share/p/j4PFvTAqxFUw7tt3/?mibextid=oFDknk
These platforms have become safe spaces for patients and caregivers to find knowledge, encouragement, and empowerment in their CLL journey.
Commitment to Health Literacy and Education
One of the core strengths the CLL Patient Advocacy Group Thailand brings to CLLAN is its commitment to health literacy and culturally appropriate patient education. With a deep understanding of the local language and culture, the group develops accessible educational content tailored to Thai patients, helping them understand complex hematological conditions in simple terms.
The group also:
- Conducts peer-to-peer education and community-driven learning sessions,
- Translates and localizes materials sourced from leading global advocacy networks including CMLAN, MPNAN, ALAN, and CLLAN, and
- Shares learnings from international conferences like Horizons, ensuring that Thai patients stay connected to the latest global knowledge.
Today, they continue to lead efforts to expand awareness, improve understanding, and advocate for better care across all leukemia types, including CLL, in collaboration with trusted partners like the Thai Cancer Society.
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