No Patient Like Me
Every person living with CLL has a different story
Advances in chronic lymphocytic leukaemia (CLL) treatment have transformed care over the past decade. Alongside these scientific developments, there is growing recognition that every person living with CLL has their own experiences, priorities and goals.
Treatment decisions should consider more than clinical evidence alone. They should also reflect what matters most to each individual, including their lifestyle, personal circumstances, values and preferences. Shared decision-making gives people living with CLL the opportunity to work with their healthcare team to make informed choices together.
Research shows that while three out of four people living with CLL would like to play an active role in decisions about their care, only one in five feel they are able to do so.¹ This highlights the ongoing need for better conversations, greater understanding and practical tools that support meaningful patient participation.
About No Patient Like Me
No Patient Like Me is an initiative developed to help strengthen patient-centred care in CLL.
The program aims to encourage more holistic treatment conversations by recognising that there is no “typical” CLL patient. Through real patient experiences and practical resources, No Patient Like Me supports people living with CLL in identifying what matters most to them and helps healthcare professionals better understand the individual beyond their diagnosis.
By encouraging open dialogue and shared decision-making, the initiative seeks to ensure that each person’s needs, priorities and treatment goals remain central to discussions throughout their CLL journey.
Resources
Explore the No Patient Like Me resources below to help support informed conversations about CLL care:
Hear from John and Julio about how they navigated their conversations about CLL treatment with their doctors and ensured their voice was heard
Hear from CLL patient advocate with partner organization, CLL Support, John Greensmyth
Hear from CLL patient advocate, Julio González
And hear from hematologist, Lydia Scarfò, Associate Professor of Internal Medicine at the University of San Raffaele in Milano, Italy, on Patient-Centered Care in CLL
References:
- Rocque, G.B. et al. (2016) ‘Shared decision-making in chronic lymphocytic leukaemia: Preferences and perceptions of patients, providers, and navigators’, Journal of Clinical Oncology, 34 (suppl.), p. 221.
