Please take the “Global Leukemia Carer Experience Survey” and share it widely within your groups!
Dear CLLAN members,
In collaboration with the Acute Leukemia Advocates Network (ALAN) and the CML Advocates Network (CMLAN), the CLL Advocates Network (CLLAN) is currently carrying out a study to understand the experiences and views of people who care for, or support leukemia patients. We are running this worldwide survey to collect information on the ‘carer perspective’ of the care, treatment and support leukemia patients receive, as well as any personal impact the diagnosis has had.
We need your help: Please share the survey link within your community and encourage those close to / caring for / supporting someone with leukemia to please complete the survey!
SURVEY LINK: www.myonlinesurvey.co.uk/ALAN22
The more people we can reach, the more representative the data. In order to make the survey as accessible as possible, we translated it in 11 languages: English, Arabic, Brazilian, Portuguese, French, German, Hebrew, Italian, Korean, Simplified Chinese, Spanish and Russian. It will only take around 20 min to complete.
Thank you for helping us capture the carers´ voice and gathering representative data!
Your 2022 Carer Survey Team
About the survey
In 2018, ALAN successfully ran the Acute Leukemia Quality of Life Survey, collecting over 500 responses from around the world. The results have been presented at numerous conferences as abstracts and posters and it informed our policy work. (More here: https://acuteleuk.org/publications/) This year, ALAN partnered with CLLAN and CMLAN to build a global picture of the experiences of people with ALL, AML CLL and CML and their carers, friends and family. Our aim is to understand the key issues, experiences and unmet needs for leukemia patients.