SESSIONS DAY 2: Saturday 6 Nov 2021

Shared Session (Medical and Advocacy) #1 – Management of the impact of COVID-19 on CLL patients

Chair: Pierre Aumont, CLL Advocates Network Steering Committee (vice-chair), ELLyE Board

Introduction to Topic & Speakers, Structure of this Shared Session
Speaker: Pierre Aumont, France

COVID-19 & CLL: The Data (skip to 04:08 on video above)
The global aspects of the pandemic and the impacts on CLL patients; clinical and patient group data
Dr Renata Walewska, Haematologist at Royal Bournemouth Hospital & chair of the UK  Dr Renata Walewska, Haematologist at Royal Bournemouth Hospital & chair of the UKCLL Forum, UK

COVID-19 immunization: vaccines and other approaches for the immune compromised (skip to 20:28 on video above)
Immunization response in CLL: How does this correlate to level of protection?
Prof Florence Cymbalista, CLL specialist, Avicenne Hospital, Paris, France

Question and Answer Session (skip to 32:52 on video above)
Moderator: Pierre Aumont, France
Panel:
• Dr Renata Walewska, UK
• Prof Florence Cymbalista, France

Panel discussion: Living with an endemic pathogen – Supporting CLL patients to navigate safely in an evolving landscape – strategies, top tips and practical support (skip to 52:37 on video above)
Moderator: Pierre Aumont, France
Panel:
• Prof Florence Cymbalista, France
• Dr Renata Walewska, UK
• Jennifer Wilson, Senior Information Specialist at The Leukemia Lymphoma Society (LLS), USA
• Lorna Warwick, Chief Executive Officer at Lymphoma Coalition, Canada
• Marc Auckland, Chair of Trustees CLL Support, UK

Advocacy Session #2 – Impact of the COVID-19 Pandemic on Patient Advocacy and Turning Challenges into Opportunities

Chair: Jana Pelouchová, CLL Advocates Network Steering Committee (treasurer), co-founder of the CML Advocates Network and President of Diagnoza Leukemie, Czech Republic

Introduction to Topic & Speakers
Speaker: Jana Pelouchová, Czech Republic

Organisational Sustainability: Good Policy and Process (skip to 01:28 on video above)
Speaker: Lorna Warwick, Chief Executive Officer at Lymphoma Coalition, Canada

Panel Discussion: Choosing your Advocacy Priorities based upon Evidence & Resources (skip to 17:27 on video above)
Moderator: Lorna Warwick, Canada
Panel:
• Jana Pelouchová, Czech Republic
• Michael Rynne, CLL Advocates Network Steering Committee, Communications Officer CLL Ireland, Ireland
• Gerard Masalago, chairman Blood Cancer Foundation of Tanzania (BCFT), Tanzania

“Hear from the Regions”: The Impact of the Pandemic on Patient Organisations – Best Practice Examples of Transforming Challenges into Opportunities (skip to 1:26:08 on video above)
The pandemic has severely impacted CLL support organisations and service delivery. Advocates were asked to submit an abstract ahead of the event to share best practice and their specific experience of service delivery during the pandemic. Four of them were selected for presentation within this session.
Chair: Michael Rynne, Ireland
Panel:
• Peter Haggert, CLL Canada, Canada
• Lea Koren, Flute of Light, Israel
• Marianne van Maarschalkerweerd, Hematon, Netherlands
• Nick York, Leukaemia Care, UK

Q&A & Discussion (skip to 2:08:42 on video above)
Moderator: Michael Rynne, Ireland
Panel: all of the above