SESSIONS DAY 3: Sunday 7 Nov 2021

Medical Session #2 – Ongoing Management of CLL

Chair: Nick York, CLL Advocates Network Steering Committee (chair) and Patient Advocacy Healthcare Liaison Officer at Leukaemia Care, UK

Summary of Day 2 and Introduction to Topic & Speakers
Speaker: Nick York, UK

Treatment Update for Relapsed & Refractory CLL (skip to 05:34 on video above)
Speaker: Prof Constantine Tam, Director of Haematology at St Vincent‘s Hospital, Clinical Lead for CLL and Low-Grade Lymphoma at Peter MacCallum Cancer Centre / Royal Melbourne Hospital, Australia

Complications of CLL (skip to 23:25 on video above)
Speaker: Dr Talha Munir, Consultant Haematologist, Leeds Teaching Hospitals NHS Trust, UK

Update on CLL Clinical Trials: What’s in the pipeline? New strategies? What is most promising? (skip to 42:41 on video above)
Speaker: Prof Anna Schuh, Director of Molecular Diagnostics, Consultant Haematologist Department of Oncology, University of Oxford, UK

Question and answer session (skip to 1:01:12 on video above)
Moderator: Nick York, UK
Panel:
• Prof Anna Schuh, UK
• Dr Talha Munir, UK

Advocacy Session #3 – Access to Treatment, Care and Services: Data-Driven Session, Evidence Collection and Survey Use

Chair: Deborah Baker, CLL Advocates Network Steering Committee, CLL Canada Honorary Board member, Canada

Introduction to Topic & Speakers
Speaker: Deborah Baker, Canada

Panel Discussion: Involvement of Patients & Advocates in New Treatment Appraisal Processes (Health Technology Assessment) for Access to New Therapies
Moderator: Deborah Baker, Canada
Panel:
• Charlotte Martin, Patient Advocacy Manager at Leukaemia Care, UK
• Raymond Vles, Board Chair, CLL Canada, Canada
• Michael Rynne, CLL Advocates Network Steering Committee, Communications Officer CLL Ireland, Ireland

Recommendations & Strategic Insights from CLLAN’s 2021 Survey Results (skip to 33:28 on video above)
Speaker: Nick York, CLL Advocates Network Steering Committee (chair) and Patient Advocacy Healthcare Liaison Officer at Leukaemia Care, UK

Panel Discussion: Add your voice! Participative Discussion to Determine Call to Action to Tackle Unmet Needs, Barriers and Historic & New Challenges (skip to 59:51 on video above)
Moderator: Natacha Bolaños, Global Alliances Manager, Regional Manager Europe, Lymphoma Coalition, Spain
Panel:
• Liselott Eriksson, Director of Scientific Affairs, Blodcancerförbundet / The Swedish Blood Cancer Association, Sweden
• Marc Auckland, Chair of Trustees CLL Support, UK
• Dr Brian Koffman, CLL Advocates Network Steering Committee, Executive VP and Chief Medical officer CLL Society, USA
• Lea Koren, Flute of light (Halil haor), Israel
• Dr Yervand Hakobyan, Armenian Hematology Association, Head of the Hematology and Transfusion Medicine Department at National Institute of Health MH RA, Armenia
• Jana Pelouchová, CLL Advocates Network Steering Committee (treasurer), co-founder of the CML Advocates Network and President of Diagnoza Leukemie, Czech Republic
• Raymond Vles, Board Chair, CLL Canada, Canada

Summary, Observations and Closing Session

Nick York, UK and Deborah Baker, Canada, members of the CLLHZ planning committee provide their observations and summary of CLL Horizons 2021 and next steps for CLLAN post Horizons in the closing session. See separate, repeated Closing Session for APAC region below.

APAC SESSION – special session for participants from region Asia-Pacific

APAC Panel Discussion: Add your voice! Participative Discussion to Determine Call to Action to Tackle Unmet Needs, Barriers and Historic & New Challenges
Panel discussion for participants from APAC region based on the management report following CLLAN´s global needs survey to show differences across countries
Moderator: Deborah Henderson (Sims), Blood Cancer Patient Advocate, Australia
Panel:
• Kathryn Huntley, General Manager of People Living with Blood Cancer, Leukaemia Foundation Australia, Australia
• Jihyun Kim, KBDCA, Korea Blood Disease & Cancer Association, Korea

Summary, observations and closing for APAC region (skip to 00:35:00 on video above)
Brian Koffman, US and Deborah Baker, Canada members of the CLLHZ planning committee provide their observations, summary and next steps for CLLAN post Horizons in the closing session.