VIDEO RECORDINGS CLL HORIZONS 2021
Learn. Share. Grow
5 – 7 November 2021, virtual meeting
Please click on the button below to access the session of your choice. The agenda below may help you when searching for your session of interest and to identify the correct day.
GO TO SESSIONS DAY 1
GO TO SESSIONS DAY 2
| DAY 1: FRIDAY 5 NOVEMBER 2021 | ||
| TIME | TOPIC | SPEAKERS / CHAIRS / MODERATORS |
| 13:00–13:51 | CLL 101: CLL Basics – pre-recorded • Epidemiology • Diagnosis, disease course, and staging • Watch & wait • Treatment & relapse |
• Dr Brian Koffman, CLL Advocates Network Steering Committee, Executive VP and Chief Medical officer CLL Society, USA • Michael Rynne, CLL Advocates Network Steering Committee, Communications Officer CLL Ireland, Ireland • Pierre Aumont, CLL Advocates Network Steering Committee (vice-chair), ELLyE Board member, France |
| 14:00–14:10 | Opening – Welcome by the CLL Advocates Network | • Nick York, CLL Advocates Network Steering Committee (chair) and Patient Advocacy Healthcare Liaison Officer at Leukaemia Care, UK |
| 14:15–16:10 | Medical Session # 1 Diagnosis, Management, Active Surveillance (Watch and Wait) and 1st Line Treatments | • Chair: Dr Brian Koffman, CLL Advocates Network Steering Committee, Executive VP and Chief Medical officer CLL Society, USA |
| 14:15–14:20 | Introduction to topic & speakers – live session | • Dr Brian Koffman, USA |
| 14:20–14:38 | The diversity of CLL – pre-recorded | • Dr Versha Banerji, Associate Professor / University of Manitoba, Clinician Scientist / CancerCare Manitoba, Canada |
| 14:38–14:55 | Diagnosis and active surveillance – pre-recorded | • Dr Alina Gerrie, Assistant Professor, Hematology and Medical Oncology, University of British Columbia, Vancouver, Canada |
| 14:55–15:15 | First Line Treatment update – pre-recorded | • Dr Nicole Lamanna, Associate Attending, Leukemia Service, Director of the Chronic Lymphocytic Leukemia Program, Hematologic Malignancies Section Herbert Irving Comprehensive Cancer Center, New York, USA |
| 15:15–15:35 | Q&A – live session | Moderator: Dr Brian Koffman, USA Panel: • Dr Alina Gerrie, Canada • Dr Nicole Lamanna, USA • Prof Paolo Ghia, Professor of Medical Oncology, Università Vita-Salute San Raffaele, Milano, Italy |
| 15:35–16:10 | Panel discussion: Managing emotional and psychological challenges of living with a CLL diagnosis – interactive live session | Moderator: Charlotte Martin UK, Patient Advocacy Manager at Leukaemia Care, UK Panel: • Dr Jonnie Raynes, Consultant Clinical Psychologist, Bristol Haematology and Oncology Centre (UK) • Anne Crook, Counsellor / Psychotherapist, Psycho-oncology, The Christie NHS Foundation Trust, Manchester, UK • Pierre Aumont, CLL Advocates Network Steering Committee (vice-chair), ELLyE Board member, France • Jan Rynne, cofounder of CLL Ireland, Ireland |
| 16:40–18:00 | Advocacy Session # 1 – Evidence-based advocacy: Creating evidence for advocacy impact | • Chair: Jan Geissler, Patient Advocate, co-founder CML Advocates Network, chair Leukaemie-Online, Germany |
| 16:40–16:45 | Introduction to topic & speakers – live | • Jan Geissler, Germany |
| 16:45–17:01 | Evidence-based advocacy – what ́s behind the buzzword, and why is it important? – pre-recorded | • Zack Pemberton-Whiteley, Chief Executive Officer Leukaemia Care, UK |
| 17:01–17:17 | Understanding Evidence-Based Research Methods: Developing and Conducting Effective Surveys – pre-recorded | • Daniel Ratchford, Head of Quality Health, IQVIA Healthcare, UK |
| 17:17–17:34 | The results of CLLAN ́s global CLL Resource Mapping and Unmet Needs Survey – pre-recorded | • Deborah Baker, CLL Advocates Network Steering Committee, CLL Canada Honorary Board member, Canada • Michael Rynne, Ireland |
| 17:35–18:00 | Q&A – live session | Moderator: Jan Geissler, Germany Panel: • Zack Pemberton-Whiteley, UK • Daniel Ratchford, UK • Deborah Baker, Canada • Michael Rynne, Ireland |
| 18:10–19:10 | ASTRA ZENECA ADVOCACY SYMPOSIUM: ‘Shared Decision Making: Let’s agree what we mean!’ Non-promotional, educational session sponsored by Astra Zeneca – live session | Moderator: Dr Renata Walewska, Haematologist at Royal Bournemouth Hospital & chair of the UK CLL Forum, UK Panel: • Prof Anna Schuh, Director of Molecular Diagnostics, Consultant Haematologist Department of Oncology, University of Oxford, UK • Raymond Vles, Board Chair, CLL Canada, Canada • Jan Rynne, cofounder of CLL Ireland, Ireland |
| 19:15–19:20 | Closure Day 1 & outlook Day 2 – live | • Nick York, UK |
| DAY 2: FRIDAY 6 NOVEMBER 2021 – “COVID-19 AND CLL” | ||
| TIME | TOPIC | SPEAKERS / CHAIRS / MODERATORS |
| 14:00–15:20 | Shared session (Medical & Advocacy) patients # 1 – Management of the impact of COVID-19 on CLL | • Chair: Pierre Aumont, CLL Advocates Network Steering Committee (vice-chair), ELLyE Board |
| 14:00–14:05 | Introduction to topic & speakers, structure of this shared session – live | • Pierre Aumont, France |
| 14:05–14:22 | COVID-19 and CLL: the data – pre-recorded | • Dr Renata Walewska, Haematologist at Royal Bournemouth Hospital & chair of the UK CLL Forum, UK |
| 14:22–14:35 | COVID-19 immunization: vaccines and other approaches for the immune compromised – pre-recorded | • Prof Florence Cymbalista, CLL specialist, Avicenne Hospital, Paris, France |
| 14:35–14:50 | Q&A – live session | Moderator: Pierre Aumont, France Panel: • Dr Renata Walewska, UK • Prof Florence Cymbalista, France |
| 14:50–15:20 | Panel discussion: Living with an endemic pathogen – Supporting CLL patients to navigate safely in an evolving landscape – interactive live session | Moderator: Pierre Aumont, France Panel: • Prof Florence Cymbalista, France • Dr Renata Walewska, UK • Jennifer Wilson, Senior Information Specialist at The Leukemia Lymphoma Society (LLS), USA • Lorna Warwick, Chief Executive Officer at Lymphoma Coalition, Canada • Marc Auckland, Chair of Trustees CLL Support, UK |
| 15:45–18:15 | Advocacy Session # 2 – Impact of the COVID-19 pandemic on patient advocacy and turning challenges into opportunities | Chair: Jana Pelouchová, CLL Advocates Network Steering Committee, co-founder CML Advocates Network, President of Diagnoza Leukemie, Czech Republic |
| 15:45–15:50 | Introduction to topic & speakers – live | Moderator: Dr Brian Koffman, USA Panel: • Dr Alina Gerrie, Canada • Dr Nicole Lamanna, USA • Prof Paolo Ghia, Professor of Medical Oncology, Università Vita-Salute San Raffaele, Milano, Italy |
| 15:50–16:05 | Organisational Sustainability, good policy and process – pre-recorded | Moderator: Charlotte Martin UK, Patient Advocacy Manager at Leukaemia Care, UK Panel: • Dr Jonnie Raynes, Consultant Clinical Psychologist, Bristol Haematology and Oncology Centre (UK) • Anne Crook, Counsellor / Psychotherapist, Psycho-oncology, The Christie NHS Foundation Trust, Manchester, UK • Pierre Aumont, CLL Advocates Network Steering Committee (vice-chair), ELLyE Board member, France • Jan Rynne, cofounder of CLL Ireland, Ireland |
| 16:05–16:40 | Panel discussion: Choosing your advocacy priorities based upon evidence and resources – interactive live session | • Chair: Jan Geissler, Patient Advocate, co-founder CML Advocates Network, chair Leukaemie-Online, Germany |
| 17:10–17:15 | Introduction, choice of best practice examples – live | • Jan Geissler, Germany |
| 17:15–17:45 | “Hear from the regions”: The impact of the pandemic on Patient Organisations – best practice examples of transforming challenges into opportunities
(The pandemic has severely impacted CLL support organisations and service delivery. Advocates are asked to submit an abstract ahead of the event to share best practice and their speci- fic experience of service delivery during the pandemic. Three will be selected for presentation at the conference.) – Abstract presentation (3 abstracts, 10 minutes each) |
• N.N. (Abstract presenter 1) • N.N. (Abstract presenter 2) • N.N. (Abstract presenter 3) |
| 17:45–18:15 | Q&A and discussion – interactive live session | Moderator: Michael Rynne, Ireland Panel: • N.N. (Abstract presenter 1) • N.N. (Abstract presenter 2) • N.N. (Abstract presenter 3) |
| 18:20–18:30 | Best Poster Award Winners – interactive live session | Presenter: Felice Bombaci, CLL Advocates Network Steering Committee, co-chairman CML Advocates Network, chairman AIL Pazienti, Italy |
| DAY 3: FRIDAY 7 NOVEMBER 2021 | ||
| TIME | TOPIC | SPEAKERS / CHAIRS / MODERATORS |
| 14:00–15:20 | Medical Session # 2 – Ongoing Management of CLL | Chair: Nick York, CLL Advocates Network Steering Committee (chair) and Patient Advocacy Healthcare Liaison Officer at Leukaemia Care, UK |
| 14:00–14:05 | Summary of Day 2 and introduction to Medical Session # 2 topic & speakers live | • Nick York, UK |
| 14:05–14:23 | Treatment update for relapsed and refractory CLL – pre-recorded | • Prof Con Tam, Director of Haematology at St Vincent‘s Hospital, Clinical Lead for CLL and Low-Grade Lymphoma at Peter MacCallum Cancer Centre / Royal Melbourne Hospital, Australia |
| 14:23–14:42 | Complications of CLL – pre-recorded | • Dr Talha Munir, Consultant Haematologist, Leeds Teaching Hospitals NHS Trust, UK |
| 14:42–15:00 | Update on CLL Clinical Trials: What ́s in the pipeline? New strategies? What is most promising? – pre-recorded | • Prof Anna Schuh, Director of Molecular Diagnostics, Consultant Haematologist Department of Oncology, University of Oxford, UK |
| 15:00–15:20 | Q&A – live-session | Moderator: Nick York, UK Panel: • Prof Anna Schuh, UK • Dr Talha Munir, UK |
| 15:50–17:25 | Advocacy Session # 3 – Access to treatment, care and services – data-driven session, evidence collection and survey use | Chair: Deborah Baker, CLL Advocates Network Steering Committee, CLL Canada Honorary Board member, Canada |
| 15:50–15:55 | Introduction to topic & speakers – live | • Deborah Baker, Canada |
| 15:55–16:25 | Panel discussion: Involvement of patients and advocates in new treatment appraisal processes (Health Technology Assessment) for access to new therapies – interactive live session | Moderator: Deborah Baker, Canada Panel: • Charlotte Martin UK, Patient Advocacy Manager at Leukaemia Care, UK • Raymond Vles, Board Chair, CLL Canada, Canada • Michael Rynne, CLL Advocates Network Steering Committee, Communications Officer CLL Ireland, Ireland |
| 16:25–16:40 | Recommendations and strategic insights from CLLAN ́s 2021 survey results – pre-recorded | • Nick York, CLL Advocates Network Steering Committee (chair) and Patient Advocacy Healthcare Liaison Officer at Leukaemia Care, UK |
| 16:40–17:25 | PANEL DISCUSSION: Add your voice! Participative discussion to determine call to action to tackle unmet needs, barriers and historic & new challenges – interactive live session | Moderator: Natacha Bolaños, Global Alliances Manager, Regional Manager Europe, Lymphoma Coalition, Spain Panel: • Liselott Eriksson, Director of Scientific Affairs, Blodcancerförbundet / The Swedish Blood Cancer Association, Sweden • Marc Auckland, Chair of Trustees CLL Support, UK • Dr Brian Koffman, CLL Advocates Network Steering Committee, Executive VP and Chief Medical officer CLL Society, USA • Lea Koren, Member of the Board of Directors, Flute of light (Halil haor), Israel • Dr Yervand Hakobyan, Armenian Hematology Association, Head of the Hematology and Transfusion Medicine Department at National Institute of Health MH RA, Armenia • Jana Pelouchová, CLL Advocates Network Steering Committee, co-founder CML Advocates Network, President of Diagnoza Leukemie, Czech Republic • Raymond Vles, Board Chair, CLL Canada, Canada |
| 17:30–17:45 | Summary, observations and closing – live session | • Nick York, CLL Advocates Network Steering Committee (chair) and Patient Advocacy Healthcare Liaison Officer at Leukaemia Care, UK • Deborah Baker, CLL Advocates Network Steering Committee, CLL Canada Honorary Board member, Canada |
| 00:45–01:15 | Repeated session — for participants from APAC region:
PANEL DISCUSSION: Add your voice! Participative discussion to determine call to action to tackle unmet needs, barriers and historic & new challenges – interactive live session |
Moderator: Deborah Henderson (Sims), Blood Cancer Patient Advocate, Australia Panel: • Kathryn Huntley, General Manager of People Living with Blood Cancer, Leukaemia Foundation Australia, Australia • Jihyun Kim, KBDCA, Korea Blood Disease & Cancer Association, Korea |
| 01:15–01:30 | Repeated session — for participants from APAC region:
Summary, observations and closing – live session |
• Nick York, CLL Advocates Network Steering Committee (chair) and Patient Advocacy Healthcare Liaison Officer at Leukaemia Care, UK • Dr Brian Koffman, CLL Advocates Network Steering Committee, Executive VP and Chief Medical officer CLL Society, USA |
Contact details
For general information about CLL Horizons, please contact info@clladvocates.net