Webinar recording now available: New EHA CLL Guidelines – Shaped with Patients, Explained for Patients

On 29 July 2026, the CLL Advocates Network hosted the webinar “New EHA CLL Guidelines – Shaped with Patients, Explained for Patients.”

Professor Anna Schuh, Professor of Haematology at the University of Oxford and co-author of the guidelines, explained the key recommendations and what they mean in practice for people living with CLL.

The presentation covered diagnosis, active surveillance, genetic testing, treatment selection, relapse, supportive care and Richter transformation. It also explored the growing range of treatment choices, including time-limited and continuous therapies, and the importance of considering individual patient needs and preferences.

The session was moderated by Nick York, who was joined for the panel discussion by Pierre Aumont, Johannes Förner and Rita Christensen. All four patient advocates contributed to the guideline writing or review process.

The discussion focused on:

• quality of life and immune compromise;
• active surveillance and patient empowerment;
• shared decision-making;
• communication and trust with clinicians; and
• the need for more real-world patient evidence.

The panellists also highlighted the important role of patient organisations in making complex guidelines easier to understand and helping patients feel confident discussing their care and treatment choices with their healthcare team.

We thank all our speakers and panellists, as well as everyone who joined the webinar and contributed with their questions.

The webinar recording is now available