Scope of organisation
Description
AELCLÉS is a non-profit organisation that was created in 2009 from the combined efforts of a group of associations with the aim of helping patients affected by onco-haematological diseases and their families to restore their health. To accompany them throughout the disease process to improve their quality of life: before, during and after the various treatments.
As an association, we represent all haematological patients to society and public institutions in order to demand better care for these patients and to promote their quality of care and improve their quality of life. In addition to making leukaemia and other haematological diseases more visible and raising public awareness of the importance of blood, bone marrow and cord blood donation.
We place particular emphasis on supporting research.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served