Associação Portuguesa contra a Leucemia (APCL) (Portugal)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
The Portuguese Association Against Leukaemia (APCL) was founded in January 2002 as a result of the initiative of a group of patients who survived haemato- oncological pathologies (Leukaemias and Lymphomas) and a group of doctors from the Francisco Gentil Portuguese Institute of Oncology (IPOFG) of Lisbon who treated them.
The main motivation of the founders of APCL lay in their understanding of the importance of raising awareness and mobilising civil society in support of all those who daily struggle with the devastating disease of Leukaemia.
APCL’s mission is to contribute, at a national level, to increase the effectiveness of the treatment of Leukaemia and other related haematological neoplasms.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served