Cent Pour Sang La Vie (France)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Cent pour Sang la Vie is a French association under the 1901 law, created in 1999, committed to the fight against leukemia in all its forms.
Our missions:
• To support research
• To improve the conditions of care for patients in hospitals and at home
• To contribute to the extension of the French register of voluntary bone marrow donors
• To inform and listen to patients and their families to help them overcome all the difficulties related to the disease.
Since 2014, the association has been organizing the National Leukemia Days throughout France.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served