Estonian Leukaemia and Lymphoma Patients Society / Eesti Leukeemia ja Lümfoomihaigete Liit (Estonia)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)


Eesti Leukeemia ja Lümfoomihaigete Liit (ELLL for short), or Estonian Leukaemia and Lymphoma Patients’ Society is a non-profit and non-governmental organization aiming to unite all those living in Estonia affected by blood malignancies. The organization is patient run, but in addition we accept as members patients’ family members and friends, relevant health workers and other supporters.
ELLL was created to stand for the rights of leukaemia patients’ in receiving the treatment they need. We have grown to represent patients of other blood malignancies such as lymphoma and myeloma and now aim to stand for their right to receive effective individual medical care, improve the quality of life, and prolong life expectancy of all blood malignancies’ patients. The goal of Estonian Leukaemia Patients’ Society is to promote the ideas and opinions of patients in decisions affecting their lives by organizing educational events for our members and rising awareness by creating accurate and thorough materials for a wider variety of interested parties (including members of the public). Due to small population of Estonia, the number of our members is also small, thus, we can offer very personal patient support. We update our patient information materials on the webpage frequently, and the information is thorough

Support services offered and available resources


Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

  • Buddy schemes (1:1 support)
  • Directory of local / national support groups
  • Local support groups
  • Online group / chat or forum
  • Patient meetings
  • Telephone support / support helpline
  • Welfare / financial support

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served