Fédération Leucémie Espoir (France)
Scope of organisation
CLL-specific support group/organisation
Description
One of the essential missions of Leucémie Espoir is to inform and provide moral support to children and adults with blood diseases and their families. This allows them to have a knowledge base on the management of their pathology and to benefit from the listening and advice of our volunteers. The Federation also provides financial support to enable access to care for some patients. We also provide administrative support by informing them of their social rights and assisting them in their procedures.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served