Halil Haor / Flute of Light (Israel)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)

Description

The Flute Of Light is the home for blood cancer patients in Israel. Their main 3 goals include:

  • Empowering patients by providing them with most updated and current information on their disease and treatments
  • Teaching them to become active partners in managing their disease
  • Fighting for access to treatments and making sure each patient gets the right drug, at the right time.

Support services offered and available resources

 

Information on COVID-19

  • COVID-19 information hub

Services for HCP

  • Healthcare professional education

Patient support services

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served