Leukämiehilfe München e.V. (Germany)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Leukämiehilfe München e.V. was founded by patients, relatives, nurses and doctors in order to improve the inpatient and outpatient situation for patients and their relatives.
They wanted to fill a gap in personal and psychotherapeutic support. In addition to patient visits and meetings between patients and relatives, they now support various other projects such as music therapy and yoga on haemato-oncological wards in hospitals.
Since 1991, it has been their mission to supplement the care of the affected families by doctors, psycho-oncologists and nursing staff wherever there are individual practical questions and assistance.
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Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served