LÖSEV Lösemili Çocuklar Sağlık ve Eğitim Vakf (Turkey)
Email
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
Our aim in establishing LÖSEV is to help meet all kinds of needs, especially health and education, of children with leukemia and blood disease, as well as to provide treatment and education on hereditary and acquired blood diseases at the national level. and to establish and operate research institutions.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served