LyLe – Patient organisation for Lymphoma, Leukemia and MDS (Denmark)

Scope of organisation

BLOOD CANCER support organisation (non-CLL-specific)


LyLe is a patient association for people affected by hematologic cancers – directly as patients or indirectly as relatives. The association’s history is short. Lyle started at an information meeting in April 2007 and its work is based on dialogue at the meeting. Overall Lyle work form 3 areas: dialogue with others, information and impact on systems.

Our goal is always to obtain and deliver updated information for patients, their relatives and for people interested in haematological diseases we are working with. Networking with patients and relatives.

Support services offered and available resources


Information on COVID-19

Services for HCP

Education services / Capacity building

  • Conferences
  • Educational events
  • Publications and presentations at relevant blood cancer meetings
  • Webinars

Digital Tools & Resources

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served