LYPA/LIPA – Lymphoma Patient Association (Serbia)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
The Lymphoma Patient Association LYPA is a Serbian Organization for lymphoma/CLL patients, family members, and friends. LYPA will continue to be the leading national Lymphoma patient association and we will try to improve the quality of life of lymphoma patients.
Our objectives are:
- Raising the level of knowledge about lymphoma
- Giving information to the patients and supporting them
- Advocating for the rights of lymphoma patients
- Pproviding better access to new treatments and clinical trials
- Promoting a healthy way of life
by providing high-quality information, organizing meetings, lectures, and training events, and sharing the inspirational story of our survivorship. We encourage, motivate, and inspire not only lymphoma patients but also every other audience.
LYPA currently represents more than 200 members or patients with CLL (information as of September 2020).
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served