Patient Power – now part of Remedy Health Media (USA)

Scope of organisation

CANCER support organisation (non-CLL specific)


Patient Power has a multi-decade history of providing CLL patients and their carers with up-to-date, credible, and compassionate information that supports through the entire cancer journey including survivorship. We are patient/carer journalists that focus on bringing the patient voice to everything we do, and we welcome collaboration with other support organizations to give our community a 360 degree set of information to empower them to take charge of their own healthcare decisions. We are excellent story tellers, news-gatherers, and media savvy reporters – with a long history of relationships globally with specialists, researchers, and patient advocates.

Support services offered and available resources


Information on COVID-19

Services for HCP

  • Healthcare professional education

Patient support services

Education services / Capacity building

Digital Tools & Resources

CLL Information

Campaigning and Advocacy

  • Advisory statements and position papers
  • Awareness campaigns
  • Health Technology Appraisals (HTA)
  • Input in writing and/or in person to government and regulatory organizations
  • Fundraising resources
  • Personal Advocacy
  • Petitions
  • Surveys of the community served