Patient Power – now part of Remedy Health Media (USA)
Scope of organisation
CANCER support organisation (non-CLL specific)
Description
Patient Power has a multi-decade history of providing CLL patients and their carers with up-to-date, credible, and compassionate information that supports through the entire cancer journey including survivorship. We are patient/carer journalists that focus on bringing the patient voice to everything we do, and we welcome collaboration with other support organizations to give our community a 360 degree set of information to empower them to take charge of their own healthcare decisions. We are excellent story tellers, news-gatherers, and media savvy reporters – with a long history of relationships globally with specialists, researchers, and patient advocates.
Support services offered and available resources
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served