Ukrainian Public Association for patients with chronic lymphoproliferative diseases (Ukraine)
Scope of organisation
BLOOD CANCER support organisation (non-CLL-specific)
Description
The All-Ukrainian Public Organization “Association for Assistance to the Disabled and Patients with Chronic Lymphoproliferative Diseases” was founded to create social assistance and protection programs for patients with CLP.
The association has united medical workers, scientists, patients, their relatives and other citizens in a common desire to provide selfless care to those who need it.
Support services offered and available resources
Information on COVID-19
- COVID-19 information hub
Services for HCP
- Healthcare professional education
Patient support services
- Buddy schemes (1:1 support)
- Directory of local / national support groups
- Local support groups
- Online group / chat or forum
- Patient meetings
- Telephone support / support helpline
- Welfare / financial support
Education services / Capacity building
- Conferences
- Educational events
- Publications and presentations at relevant blood cancer meetings
- Webinars
Digital Tools & Resources
- Apps
- Newsletter
- Podcasts
- Videos
- Website pages
CLL Information
- Clinical Trials directory
- CLL news and conference coverage
- Online leaflets & booklets
- Printed leaflets & booklets
Campaigning and Advocacy
- Advisory statements and position papers
- Awareness campaigns
- Health Technology Appraisals (HTA)
- Input in writing and/or in person to government and regulatory organizations
- Fundraising resources
- Personal Advocacy
- Petitions
- Surveys of the community served