PRE-MEETING FOUNDATION LEARNING SESSIONS – CLL 101 & Connecting through Social Media
- CLL 101 – The Basics, PART 1 – Lorna Warwick, CEO Lymphoma Coalition
- CLL 101 – The Basics. PART 2, Michael Rynne – CLL Ireland
- CLL 101 – The Basics. PART 3, Dr Brian Koffman – CLL Society
- The Changing Therapeutic Landscape – Lorna Warwick, CEO Lymphoma Coalition
- Connecting through Social Media – Let’s Get ‘Social’-able, Ciara O’Donovan, Ireland
- Connecting through Social Media – Developing and Maintaining an On-line Support Group, Jackie Martin, UK
- Connecting through Social Media – Maximising effective use of social media (see SLIDE 4 of the presentation), Nick York, UK (PowerPoint file)
Session #1 LIVING WITH A DIAGNOSIS OF CLL
Session #2 – Advocacy workshops on ORGANISATIONAL SUSTAINABILITY:
- Sustainable Organisations – Lorna Warwick, CEO Lymphoma Coalition
- Getting Started – Challenges and Lessons – Dr Neil Graham, founder of CLL Advocates New Zealand
- An established patient group’s priorities – Lise-lott Eriksson, Chair, Blodcancerförbundet
Session #3 – TESTING RELATED TO TREATMENT:
- ADVOCACY / Access to Tests, Jennifer Wilson, USA
- ADVOCACY / Access to Tests, Charlotte Martin, UK
- MEDICAL / Appropriate Testing, Kostas Stamatopoulos MD PhD
- MEDICAL / Appropriate Testing, Nicole Lamanna MD, USA
Session #4 – UK CLL Forum & CLL Advocates Network shared plenary session
- UK perspective – Optimal Therapy for CLL in 2019 – and can we achieve this in the UK? – Prof Anna Schuh (UK), University of Oxford
- CLL: What Do We Still Need to Learn? Prof Chris Fegan (UK) University Hospital of Wales
- Optimal Therapy in CLL- International perspective and panel discussion – Prof Paolo Ghia (Italy), Università Vita-Salute, San Raffaele, Milano
Session #5 ADVOCACY IN ACTION
- Evidence Based Advocacy – Pierre Aumont, France
- Evidence Based Advocacy – Including the True Patient Voice – Deborah Baker, Canada
- Advocacy – Access to drugs: Patient Organisation Role & Perspective – David Innes, UK
- Advocacy – Access to drugs: Patient Organisation Role & Perspective – Lorna Warwick, Canada
Session #6 CLINICAL TRIAL STRATEGIES
- MEDICAL, Prof Adrian Bloor MD PhD, UK
- MEDICAL, Alexey Danilov, MD, USA
- ADVOCACY, How can we work together to improve the system? Lelia Duley, UK
Session #7 – ONGOING COMPLICATIONS OF CLL
