2022 Global Leukemia Carer Experience Survey

As a continuation from the 2021/2022 Global Leukemia Patient Experience Survey and with the aim to include a carer cohort to evidence the impact from their perspective, in 2022 the CLL Advocates Network (CLLAN) in partnership with the Acute Leukemia Advocates Network (ALAN), the CML Advocates Network (CMLAN) and Leukaemia Care UK ran a Global Leukemia Carer Experience Survey to understand the experiences and views of people who care for, or support leukemia patients. It targeted carers of patients with a diagnosis of ALL, AML, CLL or CML and was made available in 11 languages. This was an international patient group-led initiative.


  • To identify priority topics, assess areas of change including (but not limited to) COVID.
  • Include a carer cohort – to evidence the impact from their perspective
  • To aid patient advocates and advocacy groups to inform and influence stakeholder communities, industry, and policy makers – enabling evidence-based advocacy.



There were 577 respondents (all of them leukemia carers) from 79 countries.



Thanks to carers worldwide who took the time to complete this survey and – by this – helped us generate patient-based evidence on leukemia.



We’d like to thank ALAN for taking the lead in delivery of this project and the sponsors that have supported this important work.