Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients
In late 2021, a multi-stakeholder coalition consisting of representatives from the global patient advocacy and clinical community formed the International COVID-19 Blood Cancer Coalition (ICBCC) to address the specific impact of COVID-19 on immunocompromised blood cancer patients (both acute and chronic), like those living with CLL and other Non-Hodgkin lymphomas (NHLs).
The CLL Advocates Network (CLLAN) as the coalition secretariat is proud to announce the launch of the ICBCC COVID-19 Patient Booklet entitled “Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients”. The guide is currently available in English only. Plans for translation are underway.
This booklet is aimed at immunocompromised blood cancer patients that live with a weakened immune system due to their illness or the treatment they receive and often suffer from frequent or severe infections. The objective of this booklet is to help these patients live a better quality of life and empower them when making decisions when navigating in a post-pandemic world.
The booklet is based on coalition members´ input collected during calls and provided in writing through a survey circulated in 2023. We express our gratitude to the dedicated ICBCC working group for their valuable contributions in shaping the content, providing advice, and offering helpful comments over the past months, and to the clinicians who have contributed and reviewed the booklet for us ahead of launch and validated it from a clinical standpoint.
Please share widely with your networks and with immunocompromised blood cancer patients to whom this may be of interest!
As part of ICBCC 2023/24 toolkit comprised of different educational materials the GP information booklet will follow.