The Global Patient and Carer Experience Survey Report 2021-2022 is now available!

September 26, 2023

We are pleased to announce that the long-awaited Global Patient and Carer Experience Survey Report 2021-2022 is now published and released on our website.

In 2021, the CLL Advocates Network (CLLAN), Acute Leukemia Advocates Network (ALAN) and the CML Advocates Network (CMLAN) with the support of IQVIA as external provider, carried out a Global Leukemia Patient Experience Survey. Shortly after, the views of carers were collected in a Global Leukemia Carer Experience Survey. The results of both surveys are now available in a combined “Global Patient and Carer Experience Survey Report 2021-2022” which can be accessed in full and in the form of an executive summary.

We’re grateful to the 2,646 leukemia patients and 571 carers from a total of 87 countries that who were willing to complete the surveys. This participation from diverse cultures, economies, and health systems, provides CLL Advocates Network and its partners with insights to support our global networks.


We wish to thank all those individuals that took the time to complete any of the two surveys. This report is YOURS! Thank you for contributing to this important piece of evidence!

Press Contacts

Nicole Schröter
CLLAN Project Manager
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