Please take the “2023 Global Leukemia Experience Survey” and share it widely within your community!
This survey is being run by the Acute Leukemia Advocates Network (ALAN), CLL Advocates Network (CLLAN) and CML Advocates Network (CMLAN).
In 2021-2022, ALAN, CLLAN and CMLAN had ran the first global leukemia experience survey, collecting over 2600 responses from patients and 580 responses from carers around the world. Some results have been presented at conferences as abstracts and posters and we also used those data to shape the 2023 survey.
The questionnaire is about diagnosis, care and treatment for leukemia. Its purpose is to provide information to help us understand the key issues, experiences, and unmet needs for leukemia patients.
Our aim is to understand the key issues, experiences and unmet needs for leukemia patients and understand how things are changing/evolving over time.
How you can help?
To achieve our ambition, we are asking for your help. Please can you share the survey link to your leukemia membership, through social media, newsletters and mailing lists.
The more people we can reach, the better the data will be. In order to make the survey as accessible as possible, we translated it in various languages: English, Brazilian Portuguese, Czech, Danish, Dutch, French, German, Hebrew, Italian, Korean, Simplified Chinese, Spanish and Russian.
Who should complete the questionnaire?
This questionnaire can be answered by anyone aged 18 and above directly or indirectly affected by a diagnosis of leukemia, whether this is somebody who has received a diagnosis or who is / has been a carer to someone with a diagnosis. Two question sets have been designed, one for patients, and one for carers. Each of these surveys will take 20 to 30 minutes to complete.
We need your help: Please share the survey link within your community!
The survey can be accessed using the following link:
https://bit.ly/GlobalLeukemiaExperienceSurvey2023
Any questions?
If you have any questions please contact Samantha at samantha@acuteleuk.org
Thank you for helping us capture the patients’ and carers´ voice, and gathering representative data!
Your 2023 Survey Team