Jan Rynne
Project and Stakeholder Relations

Jan Rynne joined CLL Advocates Network team in February 2024. She is supporting projects and managing stakeholder relations. In 2011, at the age of 39, Jan was diagnosed with CLL. Jan had an opportunity to take part in a clinical trial in the UK for a novel therapy in 2014 and is presently doing well on treatment.

In 2017, she and her husband Michael founded Chronic Lymphocytic Leukaemia Ireland, a patient-led advocacy group and registered charity that aims to support others with CLL along with their care partners and families. Jan sits as the chairperson of the CLL Ireland trustee board.

Jan is an active member of Precision Oncology Ireland’s Governance Committee, the overall oversight board for the POI programme.

In 2023, Jan graduated with a first-class honours degree in the Health and Society programme from Dublin City University and is also a graduate of the Ipposi Patient Education course.

Jan is passionate about patient advocacy and believes that positive change for CLL patients can be affected by collaboration, connection and communication.

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