Author: Nicole [Germany]

A multi-stakeholder coalition consisting of representatives from the global patient advocacy and clinical community has formed the International COVID-19 Blood Cancer Coalition (ICBCC) to address the specific impact of the pandemic on immunocompromised blood cancer patients (both acute and chronic), like those living with Chronic Lymphocytic Leukemia (CLL), and to recommend solutions and actions to mitigate those risks.

The CLL Advocates Network (CLLAN) is acting as secretariat on behalf of the coalition.

The coalition has prepared a Joint Patient Impact Statement for use in different countries to aid when advocating for the provision of anti-COVID-19 treatment and care for immunocompromised or immunosuppressed (IC/IS) blood cancer patients.

The Statement has by now been endorsed by 51 networks and national organisations of the global patient advocacy community as well as 16 renowned medical societies and representatives from the global clinical community. It´s great to see that new endorsers are joining almost on a daily basis.

The statement incl. all latest updates is now available HERE for you to use and share.

For more information about the coalition, please click HERE.

A multi-stakeholder coalition consisting of representatives from the global patient advocacy and clinical community has formed the International COVID-19 Blood Cancer Coalition (ICBCC) to address the specific impact of the pandemic on immunocompromised blood cancer patients (both acute and chronic), like those living with Chronic Lymphocytic Leukemia (CLL), and to recommend solutions and actions to mitigate those risks.

The CLL Advocates Network (CLLAN) is acting as secretariat on behalf of the coalition.

The coalition has prepared a Joint Patient Impact Statement for use in different countries to aid when advocating for the provision of anti-COVID-19 treatment and care for immunocompromised or immunosuppressed (IC/IS) blood cancer patients.

The Statement has been endorsed by networks and national organisations of the global patient advocacy community as well as renowned medical societies and representatives from the global clinical community. It´s great to see that new endorsers are joining almost on a daily basis, with the British Society of Haematology being the latest proud addition to this growing list of supporters.

The statement incl. all latest updates is now available HERE for you to use and share.

For more information about the coalition, please click HERE.

A multi-stakeholder coalition consisting of representatives from the global patient advocacy and clinical community has formed the International COVID-19 Blood Cancer Coalition (ICBCC) to address the specific impact of the pandemic on immunocompromised blood cancer patients (both acute and chronic), like those living with Chronic Lymphocytic Leukemia (CLL), and to recommend solutions and actions to mitigate those risks.

The CLL Advocates Network (CLLAN) is acting as secretariat on behalf of the coalition.

The coalition has prepared a Joint Patient Impact Statement for use in different countries to aid when advocating for the provision of anti-COVID-19 treatment and care for immunocompromised or immunosuppressed (IC/IS) blood cancer patients.

The Statement has been endorsed by networks and national organisations of the global patient advocacy community as well as renowned medical societies and representatives from the global clinical community. We are proud to announce that since its launch on 21 February, additional patient organisations and haematology societies (among them the European Hematology Association EHA) have confirmed their interest in endorsing the statement!

The statement incl. all latest updates is now available HERE for you to use and share.

For more information about the coalition, please click HERE.

A multi-stakeholder coalition consisting of representatives from the global patient advocacy and clinical community has formed the International COVID-19 Blood Cancer Coalition (ICBCC) to address the specific impact of the pandemic on immunocompromised blood cancer patients (both acute and chronic), like those living with Chronic Lymphocytic Leukemia (CLL), and to recommend solutions and actions to mitigate those risks.

The CLL Advocates Network (CLLAN) is acting as secretariat on behalf of the coalition.

The coalition has prepared a Joint Patient Impact Statement for use in different countries to aid when advocating for the provision of anti-COVID-19 treatment and care for immunocompromised or immunosuppressed (IC/IS) blood cancer patients.

The Statement has been endorsed by networks and national organisations of the global patient advocacy community as well as renowned medical societies and representatives from the global clinical community.

The statement is now available HERE for you to use and share.

For more information about the coalition, please click HERE.

The CLL Advocates Network is looking for a well-organised, agile, and detail-oriented Administrative Coordinator to join our team. The Administrative Coordinator provides administrative, project and network management support and reports to the network´s Project Manager.

Position type: Part time (20-25 h/week).

Contract: Self-employed, independent contractor.

Pay rate: Remuneration will be commensurate with qualifications and experience.

Working hours: Flexible unless required to attend internal and external meetings

Location: International – remote working.

Travel: Currently nil. Potentially, few days per year post-pandemic.

Start date: March 2022

Probation period: 6 months

Should this be of interest, please read the FULL JOB DESCRIPTION and apply by sending a cover letter and your CV to Nicole Schroeter (CLLAN Project Manager) at info@clladvocates.net

Join our team! We are looking forward to receiving your application!

The CLL Advocates Network has updated it´s COVID-19 and CLL Statement. The latest statement dd. 25 January 2022 is now available on the website.

Currently the statement is only available in English language. If you can help translate the statement into your respective language so that as many people as possible can benefit from the information therein, we would be grateful for support. Please contact us at info@clladvocates.net to ask for the editable files.

Stay safe!

The 4th CLL Horizons conference – Learn. Share. Grow. ist starting today, 5 November, and running till 7 November in a fully virtual format. Our chair, Nick York, will be formally opening the conference in our opening session at 14:00 CET today.

The final conference agenda is now available! Check it out!

We are still accepting registrations! If you have not registered yet, please do so using the following registration link!

The conference platform allowing access to all sessions live and on demand is available to registered participants only!

We can´t wait to see you at CLL Horizons 2021 – Learn. Share. Grow. Wishing all participants a great conference and a valuable learning and networking experience!

Want to learn more? Please visit our conference page.

We are only a few days away from the 4th CLL Horizons conference – Learn. Share. Grow. which is running from 5-7 November in a fully virtual format. We can´t wait to welcome you all at this year´s conference!

The final conference agenda is now available! Check it out!

We are still accepting registrations! If you have not registered yet, please do so using the following registration link!

STAY TUNED and

• check out the final conference agenda with its many renowned speakers – without a doubt their expertise and knowledge will make this an unparalleled experience!
• have a look at the newly added Advocacy Symposium on “Shared Decision Making: Let’s agree what we mean!” at the end of DAY 1 (Friday 5 November).
• you can still submit your poster on any general CLL advocacy support activity of your choice – the top-3 posters will be awareded a prize!
• you can also still submit your group´s activities, materials and projects for your exhibition page in our exhibition area on the conference platform.
• increase your ranking in the leaderboard by showing engagement – there are prizes to be won!
• let yourself surprise with some light-hearted entertainment at the end of DAY 2 (Saturday 6 November) and enjoy a one of a kind interactive magic show!

We can´t wait to see you at CLL Horizons 2021 – Learn. Share. Grow.

Want to learn more? Please visit our conference page.

Only one week to go for the 4th CLL Horizons conference – Learn. Share. Grow. CLLHZ is running from 5-7 November in a fully virtual format. We can´t wait to welcome you all at this year´s conference!

If you have not registered yet, please do so using the following registration link:

https://surveyhero.com/c/aq7qrxss

STAY TUNED and

• check out the updated conference agenda with its many renowned speakers – without a doubt their expertise and knowledge will make this an unparalleled experience!
• submit your poster on any general CLL advocacy support activity of your choice – the top-3 posters will be awareded a prize!
• submit your abstract on a best practice example around “The impact of the pandemic on Patient Organisations – best practice examples of transforming challenges into opportunities”
• make yourself visible and showcase your group´s activities, materials and projects in our exhibition area
• increase your ranking in the leaderboard by showing engagement – there are prizes to be won!
• let yourself surprise with some light-hearted entertainment at the end of DAY 2 (Saturday 6 November) and enjoy a one of a kind interactive magic show!

We can´t wait to see you at CLL Horizons 2021 – Learn. Share. Grow.

Want to learn more? Please visit our conference page.